Batten Disease Program
Batten Disease Program
Apr 4, 2025
choc.org
‘He’s the only child living with CLN2 in Saskatchewan’: community rallies for 4-year-old with rare disease
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Children with rare genetic disease get world-first treatment to save sight
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World Rare Disease Day 2025 is February 28th 🎗 2 zebra kiddo's 💕xo Charleigh's Journey - Age 9 ~ Cln2 Batten Disease 🦓 Linkyn - Age 8 ~ Malan Syndrome 🌻 My hope for today is that everyone takes a moment to learn about someone living with a Rare Disease and help spread some awareness ❤️ #careforrare #charleighsjourney #battendiseaseawareness #rarediseaseadvocate #grief #learning #awareness #kindness #MalanSyndrome | Charleigh's Journey
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World Rare Disease Day 2025 is February 28th 🎗 2 zebra kiddo's 💕xo …
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