The BDSRA Annual Family Conference is a haven for our Batten disease community. It’s where lifelong bonds and friendships are formed and where crucial information is learned. Your gifts to the BDSRA Foundation make the Annual Family Conference possible, so Batten families like Mitch’s won’t be alone on their Batten journey. Join our Batten families in the fight for treatments and a cure for Batten disease: https://ow.ly/PfGS50XIE9H Mail checks to: BDSRA Foundation PO Box 30049 Gahanna, OH 43230
2:28
The BDSRA Annual Family Conference is a haven for our Batt…
997 views1 month ago
FacebookBDSRA Foundation
Family Stories - Beyond Batten Disease Foundation
Family Stories - Beyond Batten Disease Foundation
Nov 21, 2019
beyondbatten.org
Hollywood Producer Fights to Save Daughters From Rare Disease
5:48
Hollywood Producer Fights to Save Daughters From Rare Disease
May 6, 2016
ABC NewsABC News
Alberta siblings with rare, terminal disease finally have hope for a treatment
3:58
Alberta siblings with rare, terminal disease finally have hope for a tre…
Aug 10, 2023
Global NewsDestiny Meilleur
Batten Disease
Batten Disease
May 8, 2018
nationwidechildrens.org
Little feller just born | Batten Family Farms
0:18
Little feller just born | Batten Family Farms
318.9K views7 months ago
FacebookBatten Family Farms
7.5M views · 48K reactions | Why are cattle so dumb? 藍 | Batten Family Farms | Facebook
0:16
7.5M views · 48K reactions | Why are cattle so dumb? 藍 | Batten Famil…
3.2M views2 weeks ago
FacebookBatten Family Farms
0:29
Busting some turds while we have a little moisture | Batten Family Farms
80.2K views11 months ago
FacebookBatten Family Farms
0:26
First calf heifer #ranchlife | Batten Family Farms
7.7K views7 months ago
FacebookBatten Family Farms
0:53
This family only has one month to fund life-saving treatment for thei…
26.9K viewsSep 22, 2017
FacebookGoFundMe
2:31
Family fighting for cure after daughter's batten disease diagnosis
6 months ago
MSNCBS Minnesota
Milasen: Genetic diagnosis to custom drug, in under 1 year - Bo…
Oct 10, 2019
childrenshospital.org
4:21
What is Batten disease? Doctor and family share insights on rare cond…
11 months ago
MSNFOX 32 Chicago
2:15
#URMC's Dr. Erika Augustine became a pediatric neurologist to …
93.9K viewsJun 7, 2016
FacebookUR Medicine
0:39
Batten Disease and Childhood Dementia
Jun 8, 2023
ABC NewsSupplied: Mandy McWaters
Batten Disease: Gene Therapy Offers Hope For Boulder Girl
Jan 30, 2018
patch.com
1:36
Family fights for a cure after batten diagnosis
6 months ago
MSNWHAS-TV Louisville
0:08
3.1K views · 141 reactions | Batten Family Farms on Reels | Facebook
1.3K views3 weeks ago
FacebookBatten Family Farms
3:31
Ely Bowman, 4-Year-Old Boy, Receives New Drug For Batten Dis…
Sep 8, 2017
International Business TimesPritha Paul
2:58
Ultra rare ‘one-in-eight billion’ genetic disease hits 3 Alberta sibli…
Jun 23, 2021
Global News
0:55
'He's been super strong': Utah family raises funds for son fightin…
2 months ago
MSNKTVX Salt Lake City
Couple who lost daughter to disease find new family as they share her …
Nov 23, 2016
deseret.com
0:01
Family warns of bat danger after Utah man dies from rabies
Nov 8, 2018
kutv.com
23:17
614K views · 14K reactions | Ellery is diagnosed with a progressive...
614.7K views2 weeks ago
FacebookSpecial Books by Special Kids
Disease experts, family of Utah firefighter lost to COVID-19 warn a…
Jul 25, 2022
fox13now.com
A new children's book is helping families talk about rare, fatal Batte…
Dec 3, 2022
ABC NewsKathleen Calderwood
3:08
3 children with rare, fatal disease access treatment to prolong their l…
Aug 9, 2023
Global News
1:03
Furqan parwez on Instagram: "Very emotional film Movie: Love, Kenne…
5.4K views2 weeks ago
Instagraml_.movies_hub
0:59
Meme | Movie | Culture on Instagram: "🔥 interesting facts: 🎬⤵…
2.2K views2 months ago
Instagramnevan2b
0:19
Confronting the Challenges of Batten Disease
14.3K views4 months ago
TikTok_ollies_army
See more videos
Static thumbnail place holder